← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

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@giannam

Hi @maryanneelizabeth, first, thanks for your genuine concern, empathy and encouragement! I agree and truly appreciate the warmth, sharing of information and caring from this group. It's a lifesaver for me at this crossroads with meds and time.

If it helps anyone, this is how my treatment plan came to be. PCP did a baseline DEXA in 2007, which revealed I was in the osteopenia category. By 2009 my BMD showed a loss of 7.3% (spine) and 12.9% loss (L hip) — now full blown osteoporosis.

In 2010 I was given Reclast, my first osteoporosis treatment I had a horrible reaction to the drug and vowed never again. In 2011 I began Prolia and continued to present day with little to no side effects. Evenity is a newer drug (same mfg as Prolia—Amgen) after being denied it was finally FDA approved 4/9/19 and continues to carry a black box warning.

My recommended treatment now: Reclast, then Evenity. The thought of either is terrifying—I still have a 'never again’ feeling towards Reclast. Trying to take deep breaths.

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Replies to "Hi @maryanneelizabeth, first, thanks for your genuine concern, empathy and encouragement! I agree and truly appreciate..."

@giannam why Reclast first and then Evenity? Doesn't it make more sense to do Evenity first and then Reclast? I have read that doing a biphosphonate after a bone growing drug rather than before, is preferable. Bone quality is better with the bone-growing drugs and is a better foundation for maintaining with anti-resporptives. I am only another osteoporosis patient and not a doc but have read a study on this and it makes sense intuitively. Or maybe they want to see if Reclast does the job and then you wouldn't need the Evenity? Or insurance is requiring this order of things?