Fear of radiation after lumpectomy
I was seriously thinking of refusing radiation after lumpectomy because I had complete removal of tumor with wide negative margins. I was convinced that there would be no lung, rib, or heart radiation by using the prone(lying on stomach) with breast hanging down. They have been very careful with treatments & very accommodating so after 4 treatments I am feeling more secure by my decision to do this to ensure all cancer was caught.
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Turkey tail mushroom is prescribed to all cancer victims in Japan. I got some on Amazon. Unfortunately it gave me diarrhea.
I have mentioned here before that i was left with some neuropathy from the chemo, but I had no problems, except losing my hair ,and no problems with 30 sessions of radiation, just this year. I am 80. I decided not to take Tamoxifen because i had an awful menopause with no estrogen in my system, I had a lumpectomy and two lymph nodes removed.
My husband died right before my cancer was found. We had been married 58 years, the last 10 as his caregiver. What with everything that has gone down, I still thought I was happy, then I finally realized I was very anxious. My oncologist upped my dose of Citalopram from 10 to 20 mg. and what a difference! Now I can let things slide.
I agree with others here, you MUST do research, learn and ask questions. I just finished 3 weeks proton beam radiation, and I feel really, really great. My neck, collarbone was radiated. I feel quite well. I have LVI Lympovascular Invasion and decided that radiation and an inhibitor along wtih a plant based diet, exercise, faith and positive relationships and outlook are my best defense against a reccurence. It's hard but
God is with us.
I should add my left breast, nodes were also radiated. Lots of radiation.....yuk.
The actress Elizabeth Taylor refused to cover-up her tracheotomy scar for movie shoots. She called it her badge of courage and a reminder of personal strength. And a reminder to other women of theirs. And that human strength is the only example of real beauty in her eyes. I like the notion while fully endorsing anything that helps any of us move forward more comfortably.
The Fungi Perfecti series with renowned mycologist Paul Stamets on Netflix was fascinating to watch the other night. The truth is that nature holds legions of answers to so many conditions we face. It's just a matter of time and money spent on looking for them. And keeping the knowledge freely available in the public domain and not owned by corporations and hedge funds like some genetics codes!
I think everyone's preference list is l
Sorry tried to delete not post above. It was going to say that everyone's personal preference list is legitimate for that person. We have to live our lives, in and around and despite, health conditions and treatments and cannot even hope for perfect decisions, just those that seem the most right.
I am dealing with a similar situation. I just had lumpectomy for Grade I invasive ductal carcinoma, ER/PR positive and HER-2 negative. Spot removed was only 0 .6 cm (smaller than pea size). Surgeon rec is radiation plus AI. I have suffered for my nearly my entire life with chronic fatigue, fibromyalgia, autoimmune thyroid, depression, irritable bowel syndrome, anxiety, vertigo, dizziness, swelling, severe allergies, etc. Three lymph nodes were removed and none of them tested positive. My BARC genetic test came back negative also. Surgery report says all margins are clean. I have struggled my entire life to overcome the overwhelming amount of symptoms I already have. In addition, my father died of leukemia and also my cousin on his side. My cousin on my mom's side has lupus and thyroid issues as does the entire side of mom's family. My aunt had lung cancer. With my history, I do not want to risk making my already awful quality of life even worse. So I am waiting on my Oncotype results. I too have read horrible things about AI and radiation. Radiation can bring on leukemia and lung cancer later on. I've had to cut back on work already due to my existing issues, so I can't afford to quit. I need to still work to pay bills. So far, I have not found that the benefits of radiation or AI's outweigh the risks or decreased quality of life. Unless there is some indication that you are at higher risk of recurrence. I'd like to see some studies on this topic but haven't found much out there yet. Has anyone out there found any studies on this?
I have not seen any studies. I had a mastectomy so my situation is quite different as no breast tissue remains ( theoretically). I can say that I am one of those who has very strong reactions to medications. That said, I am taking an AROMATASE inhibitor ( Anastrozole) and in month 6 and I am not experiencing any noticeable symptoms ( possible slight hair thinning which has lessened so may be a response to the surgery/anesthesia). So my gut response, with ER positive, is to try it and see if it is in fact a problem for you. Age and menopause status may also play a factor.
I’m truly sympathetic to your concerns and one would hope for more research to address these questions and concerns on a more targeted and individualized basis.
I hope you find a peaceful path on this journey. 🌸