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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: 1 day ago | Replies (508)

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@johnbishop

Hi Jake, I wasn't aware of that there are stages of numbness. I have heard stages assigned to levels of neuropathy but never thought much about them. My numbness started in my toes in my late 40s and then gradually crept into my feet and to just below my knees in my late 60s. I had very little feeling in the feet but did have some feeling in the legs around the knee and calves. I started the supplements in 2016 after being diagnosed with small fiber PN and being told there's no treatment that will help and just to let them know if it got worse. Two months after I started taking the supplements it seemed that I could tell the difference and numbness felt a little above the ankles instead of just below the knees. Then this past year I've been having some feeling return to the bottom of my feet. They still feel numb but at times they seem more normal. I haven't bothered with any additional testing so it really is subjective on my part. I also make it a point to keep my rub my feet and legs with a moisturizer daily at night which I think helps since the peripheral nerves are close to the skin.

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Replies to "Hi Jake, I wasn't aware of that there are stages of numbness. I have heard stages..."

John - what kind of lotion do you like for your feet at night?

I have not had a diagnosis of PN but with all my other Autoimmune joiners, it seems likely. My PCP agrees. I have had neurological studies on my degree of numbness. I do not know about the supplements or any other thing I might do to lessen my numbness and therefore have less impact on my balance. Should I be diagnosed? It is very hard to find a neurologist. The last one able to see me diagnosed me with Charco Marie Tooth Disease which other doctors did not agree with. I am 74 have Medicare and AARP and the ability to supplement the payments. Am I able to get an appointment at Mayo? Any other suggestions?