Please remember that PMR is a type of systemic vasculitis. It is always possible that the pain or problems you are having are vascular and not neurological. I went to a Neurologist with what I believed were neurological problems and after extensive tests that showed nothing I finally figured out that the pain was vascular in nature. I am not on steroids for pain management and I still have fathom pains in my head, feet and lower legs which I have finally decided are vascular pains.