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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1363)Comment receiving replies
Hello Ginnam. Prolia before Evenity? That’s interesting. Glad to know you had no side effects from Prolia but sorry about your fracture. Sounds like we all are nervous about these med decisions. All we can do is weigh all the facts, listen to your doc and pray we can get through this without a debilitating future. I think you found a great huddle group on this site. Be strong. Stay strong. Reach out when you need to. We all care about each other here. Hope you find peace and calm. All the best to you.
Replies to "Hello Ginnam. Prolia before Evenity? That’s interesting. Glad to know you had no side effects from..."
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Hi @maryanneelizabeth, first, thanks for your genuine concern, empathy and encouragement! I agree and truly appreciate the warmth, sharing of information and caring from this group. It's a lifesaver for me at this crossroads with meds and time.
If it helps anyone, this is how my treatment plan came to be. PCP did a baseline DEXA in 2007, which revealed I was in the osteopenia category. By 2009 my BMD showed a loss of 7.3% (spine) and 12.9% loss (L hip) — now full blown osteoporosis.
In 2010 I was given Reclast, my first osteoporosis treatment I had a horrible reaction to the drug and vowed never again. In 2011 I began Prolia and continued to present day with little to no side effects. Evenity is a newer drug (same mfg as Prolia—Amgen) after being denied it was finally FDA approved 4/9/19 and continues to carry a black box warning.
My recommended treatment now: Reclast, then Evenity. The thought of either is terrifying—I still have a 'never again’ feeling towards Reclast. Trying to take deep breaths.