Please don’t give up. It’s the doctors that can’t give a diagnosis so you are crazy. You’re young. Keep going. Maybe a trip to Mayo when it gets warmer. I was diagnosed with PMR and got through that. Then came GCA and I am 80 and still on Actemra and prednisone. I’ll never get off Prednisone because of no adrenals. I now have several other issues. I. E. Tumor in my hyperglossal nerve which controls your tongue. There are several other unusual things going on. I live in Florida and am finding it difficult getting proper diagnosis. Speech is a problem, eating, drinking and/or taking pills. But I’m not finished with this life. So you at 42 need to find a way to get at least a diagnosis. Message me I’m on F/B. Marilyn Redder. We should continue this conversation.