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My Journey with Polyarteritis Nodosa (PAN)
Autoimmune Diseases | Last Active: Mar 28, 2022 | Replies (19)Comment receiving replies
Hi Susan, how have you been?I also was diagnosed with PAN with a biopsy. My symptoms are the redness on my skin (livedo reticularis) & numbness on left pinky. The redness has spread I believe it was in 2019 that I got more redness that spread to my stomach and top of feet & top of chest. I am not on any medication I’m trying to do things naturally but unfortunately I’m having some weird symptoms since 2020 where I feel dizzy wake up from my sleep just having an ill feeling like I may pass out and also I have a constant tightness on my left chest area. I don’t know if the other symptoms are connected to PAN since it’s a rare disease and not well known about. My primary doctor thinks it’s anxiety but my specialist thinks it’s PAN and urges me to be on prescription. Does anyone else here have similar symptoms as I do?
Replies to "Hi Susan, how have you been?I also was diagnosed with PAN with a biopsy. My symptoms..."
@brookraven I”m glad you found Mayo Connect and hope you’ll find some of the help, advice, and tips that you’re looking for. PAN is a serious autoimmune disease and needs prompt treatment. I included a link to The Vasculitis Foundation. My sister, who has some form of vasculitis, highly recommends this group for information. Her vasculitis mostly impacted her kidneys, leaving her in chronic renal failure. I suggest that you listen to your rheumatologist and start medication or get a 2nd opinion.
https://www.vasculitisfoundation.org/education/forms/polyarteritis-nodosa/#:~:text=or%20muscle%20tissue.-,Treatment,such%20as%20methotrexate%20or%20azathioprine.
What do you hope to learn from your bloodwork?
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Oh finally, a fellow PAN-ite!!
You are the first person with PAN I have ever been in contact with…
Aren’t we special! lol
PAN is serious stuff. I hope you have a rheumatologist who is familiar with this disease because it can be life threatening.
In my opinion, you are experiencing the effects of inflammation. I believe that you should consider taking prednisone. It can put the evil PAN in its place for awhile and prevent it from destroying your organs or nerves. Very important.
Most doctors know nothing about PAN. I have had to teach mine…
Please be careful with this situation. Keep me posted on your journey.
Susan