Connect
← Return to Anyone here dealing with peripheral neuropathy?
Discussion
Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Hi everyone , I have small fibre neuropathy diagnosed 4 years ago , I am a sixty year old woman . I have tolerated this condition until now . I don’t want to blame the phyzer vaccine , but 2 days after having it all hell broke lose . I am in a lot of pain now , mainly feet , burning , loss of sensation and my balance has become poor . Why I am writing this is I now am also experiencing Unexpected bouts of extreme heat that comes on for no reason , it doesn’t last long but it is quite distressing. Is there anyone who has a problem with their temperature and this condition please respond if you experience this and if you know why
Replies to "Hi everyone , I have small fibre neuropathy diagnosed 4 years ago , I am a..."
I ALSO a couple of days after pheizer booster got terrible burning tingling electrical feeling throughout my body. The peripheal neuropathy originally began. After the initial vaccine but was manageable. No answers from neurologists just prescribe drugs. My internist told me to take folate and i am trying a natural nerve formula daily nerve support bought on Amazon. Seems to be helping for the moment anytway, I continue to do my own research because I do not want to take these drugs they prescribe. Tried only a short time and did not like what they made me feel like, Soi I continue to follow these sites and trying to get into neurology dpt at Mayo which is next to impossible
Connect
Hi, I am a 67 year old guy diagnosed with Small Fibre Neuropathy 5 years ago, with burning soles of my feet 24/7 worse at night. I now limit my time on my feet to 5.30am to about 1.00pm and never wear shoes or even socks in an effort to limit the pain which always increases after 4.00pm or so. Have been on Pregabalin 150mg morning and night for over 4 1/2 years and tolerate the side effects because I'd rather not take an opioid.
I first experienced burning on the soles of my feet after work around 6pm, and this was for about 7 years before the pain suddenly escalated to unbearable over just 4 days at the end of 2016, never to return to those early levels.
I have experienced some night sweats but whether it's from SFN or something else, I can't say. I can relate to loss of balance, I tend to crash into furniture as I walk past, or bang my hand against things and cause a bruise. Other things like somnolence, fatigue, depressed mood, sleep deprivation, and memory depletion I put down to the combination of Pregabalin my hypertension medication and the whole SFN experience causing me to have to retire from my career 5 years early, change from an active outdoor life to a sedentary indoor one has taken a toll on me, physically and mentally. I am fortunate to have a loving, supportive wife, children and grandchildren to keep me going. This is my first post ever, and probably too long, but is there anyone else missing sleep due to the night time pain?