Have you seen a functional medicine doctor? Have you had a Lyme test? Do you have arthritis in your hands (carpal tunnel tends not to twist hands, but arthritis does)? What is your actual ANA and CRP?

Unfortunately it takes years to get a diagnosis for so many, and so many are told it is a psychological problem. In the end a label makes little difference other than for an insurance code, but it does gain respect for your suffering. That said, what medications would be acceptable to you? Would you take prednisone or other immune-suppressants?

I really think a functional medicine doctor or a rheumatologist with a more integrative bent might be of help to you. Or a physiatrist perhaps. Spaulding Rehab has an extensive program with MD (physiatrist), PT, OT and psychologist for pain and illness management, which is quite integrative in its approach. Perhaps you could find a program like that.