It seems a mystery to me why ME/CFS remains a mystery to doctors. The research being done is done with good intentions, however when you read it, it seems unstructured. I don't understand why there is no data base. We live in a super technical age. A data base would be a good starting point. Why not examine what we all have in common. Then, go from there as a research group. Instead, the information I read is scattered all over the place. I'm sure the physicians involved have the best of intentions, but there seems to be a lack of organization. After 40 years, I would assume this puzzling
ailment would put everyone on the same page. It hasn't. Also, jumping the long Covid bandwagon isn't going to help the ME/CFS people. Long Covid and post-Covid syndromes have definite origins. ME/CFS seems to have a mystery origin for which there is no marker. Perhaps the Mayo can help
straighten all this out since the clinics are known for their superb problem solving. I share everyone's concerns and hope we can move forward in a more positive, organized manner. As for the person who said "doctors have clue how to heal autoimmune," ME/CFS sufferers ARE THE CLUES.