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Myasthenia gravis; Making an informed decision for my Treatment Path

Autoimmune Diseases | Last Active: Feb 24 6:42pm | Replies (25)
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@carrie13

Hi Ellen! I am currently on Mestinon in the liquid form as I still cannot swallow. I take it four times a day… Twice a day At 2 1/2 ML and twice a day at five ML. At first I did not see any difference but now my hands are becoming more limber and I’m able to use my thumbs. In addition, I am taking Imuran also… I begin with 50 MG and now I’m up to 75 MG a day. It took me almost 2 weeks to decide to begin the pills because of all the side effects; but in the end I had to begin to take something so I chose this course. I’m sorry to hear that you are having so many problems after Covid and I wish you the best of luck on your surgery. I will keep you in my prayers. Keep the faith. Carrie

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Replies to "Hi Ellen! I am currently on Mestinon in the liquid form as I still cannot swallow...."
ellen307 | @ellen307 | Mar 24, 2022

Hi Carrie,
Hope the mestinon helps you, did you have thymectomydone. I had my thymus gland removed put me in remission but do come out of it., waiting for sugery is eternity. Be happy when April it’s arrives.

Have a great day Carrie

Ellnen307

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Becky, Volunteer Mentor | @becsbuddy | Apr 29, 2022

@carrie13 hello, you’ve said a couple of times about being concerned about side effects of the drugs. As a nurse, we learned that most of the side effects are Very rare. The FDA says that all the side effects must be listed “just in case.” 90+% of the time, people only experience mild side effects which gradually go away or are controlled with a change in dosage.
I’m glad to hear that you have started mestinon and are seeing benefits from it!
Keep up the good work and don’t let MG win! Sound like a good plan?

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