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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Jun 17 2:01pm | Replies (1174)Comment receiving replies
Thank you so much for the article about choosing a doctor. I have severe osteoporosis and was referred to an endocrinologist who recommended Evenity. I’ve had three set of injections and am experiencing bruising and lumps at injection sites, joint pain/aches, fatigue, headaches, dizziness and occasional shortness of breath. Unfortunately the response from my endocrinologist and his staff when I’ve communicated these issues is that they’ve never heard this before, which totally invalidates what I’m going through. While I wish you weren’t experiencing some of these same issues, you have made me feel like I’m not alone nor am I imagining what I’m feeling. After reading the article you referenced, I’m going to explore meeting with a rheumatologist. I believe this may be a better direction for me. Will update as I move forward.
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Hi Mikko, I'm sorry I've taken so long to respond. I received my 10th set of injections on Tuesday the 29th. Even though my rheumy/Endo have me a few weeks off, I was met with the same kind of dismissal of my side effects. Since I have Crohn's Disease, doctor's love to put anything and everything under that umbrella. I know how my Crohn's acts (I've had it for 42+ years) and it's not these symptoms at all. I'm really sad to hear that you are experiencing the same things! This drug is new and if the docs don't listen to us , they get to tell other patients that they haven't seen anyone having side effects. That's wrong. The few weeks off helped me, but my headaches and insomnia are already starting to get bad again. I'm going to try to finish the last two (depending on how I do with this last set) because my osteoporosis is severe. If I can't do it though, I can't do it. You know your body and can stop the treatment if needed. You're not alone!! I'll post another update soon. I hope you feel better and can get through the treatment! Hugs!