← Return to Concerned: I'm beginning to suspect I have pancreatic cancer

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@hlj

Thank you so much for the response. Depending upon the results of the elastase test, I do plan to have Roswell Park give me a second opinion. I did ask my PCP for some cancer marker tests but she has refused so far, as has my GI specialist. Despite my continued weight loss, I believe they are both brushing me off simply because I also have an anxiety disorder, which is unfair and frustrating. My body seems to be wasting away, and not having any answers is terrifying.

May I ask about your own cancer journey? What were your symptoms and treatment experiences?

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Replies to "Thank you so much for the response. Depending upon the results of the elastase test, I..."

@hlj, I completely agree with @bb21 about getting a second opinion with another GI specialist. Keep in mind that the symptoms you describe do not definitively mean you have cancer or pancreatic cancer. Weight loss is a common symptom for many different conditions.

Clearly you need answers. I have my fingers crossed that it is something that can be easily managed. If you would like to request an appointment at Mayo Clinic, here is more information on how: http://mayocl.in/1mtmR63

What can you do to keep yourself calm as you seek answers?

I have a history of obesity, thus diabetic and soft stools from IBS. I suddenly had acute pancreatitis in summer of 2017. diagnosed as idiopathic...no known reason. A couple of months later a resident doing clinic visits ask if could check my lipase since it had not been retested since my release from the hospital. It was higher than when I was released, not real high but above normal. My primary doctor decided to send me to Duke GI group to be evaluated. I had an upper endoscopy that was clear but perhaps indication to watch for..Intraductal Papillary Mucinous Neoplasms (IPMN). I was watched for a couple of years with MRI's, change in symptoms of which I had none. Then in September 2020, one GI specialist just wanted to make sure that things were okay and ordered another Upper endo to see if secretions were in the bile duct that could be cancerous. They also ordered a CA19-9 and it was 100 (norm 0-40). They then saw a tumor that had grown in few months. I consulted with Oncology and a surgeon in the same day and the team decided to go Chemo first and then surgery. Tumor was confined to head of pancreas with no vascular involvement. Did chemo from November to Jan. 2021 and due to good response and the fact that chemo was working havoc on my platelets, we decided to do the Whipple surgery. Tumor was larger than expected but still confined and surgery went well. Removed 25 lymph nodes of which one was positive. Genetics revealed that I had a rare type found only in 1-2 % pf Pancreatic cancers and high to become resistant to treatment. I hve since had lesions found in liver and thus considered metastacized. I am fighting this even though it is probably fatal but so are many things. I decided that whatever time I have, I want to live, to love my husband, kids and grandkids even harder. "We" have to keep our heads up and looking forward with positivity or we just waste our days. Smile, laugh, enjoy life. We are here to support you and remember that your symptoms be many things.