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Any NET patients from NYC

Neuroendocrine Tumors (NETs) | Last Active: Feb 15, 2023 | Replies (24)

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@laurell410

3 weeks ago I had a MRI and it found a tumour on the tail of the pancreas and 3 tumors on the liver. I saw one doctor at Mt Sinai but decided that I would rather seek care at Memorial Sloan Kettering Cancer Center. I am scheduled for a biopsy this Friday 25th. I see a hematologist every 6months because of anemia and she noticed that my platelets have been declining,,she thought that there was an issue with my spleen; but it turned out to be NET

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Replies to "3 weeks ago I had a MRI and it found a tumour on the tail of..."

Hello @laurell410, I'd like to add my welcome to you as you have joined the NETs discussion on Mayo Clinic Connect. Those of us with this rare form of cancer find support and encouragement by sharing together our experiences. I have had three surgeries for NETs in the duodenal bulb. The lesion was found incidentally when an upper endoscopy was done. I had no symptoms.

I see that you had a biopsy on the 25th. Have the results been posted yet?

It would be interesting to know what symptoms led to your diagnosis of a NET in your pancreas. Were you have digestive tract problems or low blood sugar?

I look forward to getting to know you. Will you continue to share?

I am currently seeing at Mount Sinai I am calling a Dr tomorrow at Slone for a second option
I need answers