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DiscussionCLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
Replies to "Greetings! Newly diagnosed CLIPPERS patent here. I'm happy to have found this forum and hope to..."
@astanko wondering how you’re doing. Has anything changed/improved for you? Hope all is well.
Welcome @astanko We’re glad you found this site. And you sound like you’re doing OK. Did you have a brain biopsy to confirm the clippers? There seem to be only a few of us who exist with clippers! I’ve been dealing with this for about 4 years.
Since you are on hi dose steroids, have you had a DEXA scan to check the health of your bones. Prednisone can really do a job on bones and eyes. :-(. I’m dealing with osteoporosis now and also just had surgery for cataracts.
What is the doctor’s next plan once your prednisone gets low? I’m now on Mycophenolate as i taper off the prednisone. Sorry, I’m giving you too much info when your so new to all this.
Do you have a good neurologist that you like?