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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (578)Comment receiving replies
Replies to "I’m a little confused. Are you saying that 2 of your 3 sisters are against you..."
It is not their decision. Only mine and I cannot wait!!! Wish it were tomorrow!!!
I think they are supportive now but think they read some of the scarier accounts and thought too chancy. One said I did not understand that the Chemo for the transplant was way worse than my weekly protocolS I said I knew that but perhaps only two days and was sure I could tolerate that. Some things on the internet are older and so many are done now that am sure I will prevail. The Mayo doctor did give me the odds but I am a gambler and despite our run of bad luck with this and his car, I think they are still well in my favor.,I will be sharing your roommate’s experience…it might not be mine but then it could be! I will say that no matter what I have taken di far no nausea and a good appetite so will go with that scenario! I am determined to have one if I possibly can! I am so thankful that Mayo seems to think it can happen. Of course way more positive one day 1 before my PET came back. He does seem to think the Revlimid will come through! My sister went with me to my last/first back with her this year. Her husband died two years ago from Pancreatic cancer. He also had diabetes and Parkinson’s, the latter not diagnosed for three years! He had freezing but not the usual symptoms. I do think that when I went into remission they thought I’d escaped a wirse fate and I would have a few years. Sadly it was just the opposite! Had I gone to z Mayo then they would have found it right away since had issues only weeks later but declared as returned on 12/27! Why it took 2.5 months is still beyond me!