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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (549)Comment receiving replies
Replies to "You are off three years? Was it MM? I cannot imagine being off them but hope..."
No, I didn’t have MM, but AML, Acute Myeloid Leukemia and a subsequent bone marrow transplant from an unrelated donor. I was on several combinations of chemo to get and keep me in remission until the transplant. The transplant has its own chemical toolbox. After transplant, no more chemo but I was on meds for anti-rejection, anti fungal, antiviral, 2 antibiotics, Protonix for stomach, magnesium, and a few others when needed. The AML and transplant event are coming up on 3 years. But I’ve only been off the meds for 5 months. It takes time and each person’s requirements are different. But I now feel fantastic and not taking any meds at all except magnesium (by choice) and Calcium/VitD3
Your transplant will be different, using your own cells and your recovery should be a little easier with less adjustment. Your chemo will be much less and I’m expecting fewer post transplant meds too. I don’t know if you’ll be able to shed all your meds. That gets decided as you go along. But for now, whatever you have to take to get into remission and to get healthy it’s vital to continue treatments. Side effects are sometimes just the necessary evil to getting the main job done.
As far as checkups. Initially, blood work is frequent. Daily, when I was living in Rochester the 4 months post transplant. Then care was transferred to my local oncologist/hematologist for blood work. That was weekly, then progressed to 2, 3 and monthly. I’m now at a 6 week schedule.
Is today your next appointment? Do you have your list of questions all set??