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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 5 hours ago | Replies (578)Comment receiving replies
Replies to "Well did the Enoxaparin injection so decided not to wait as Revlimid and Dexamethasone do increase..."
Congratulations on taking the Enoxaparin like a trooper!!! Your husband did a great job and now you’ve got that first one out of the way. You really don’t want to gamble with a DVT when you’ve got the meds right there. I bet you feel relieved to have that one literally under the belt, huh?
Getting refills from Mayo Pharmacy is pretty easy but yes, don’t delay. Do it soon because there’s shipping time.
Your meds and your disease make you tired, tired, tired. Believe me, fatigue might be your friend for a while. I know that feeling well. As an active person, not having that energy you’re used to will leave you feeling very frustrated and like you’re losing control of your normal life. I went through that too and it was so difficult to actually ask for help. I’m fiercely independent and never need help! Finding out I was only human was a shock! 😅. So I enlisted my husband when needed, called girlfriends, neighbors were great! Our daughter lives 5 hours but she’d come for 2 weeks at a time to help out. So you might have to make adjustments and slow down. I think I mentioned this before but the hardest lesson I had to learn was to “Listen to my body”. It will tell you what to do!
Don’t dread the chemotherapy. For your particular transplant for MM, from my understanding, it’s only 1 or 2 infusions and then you’re done. You’ll be provided with anti nausea meds to help with that part. And sometimes a few weeks later there can be a little hair loss. But with your reduced doses, maybe not. It’s just easiest going into this knowing it’s not going to be a walk on the beach but it’s survivable and life on the other side of transplant gives you hope for a good future.
Your husband has a great sense of humor. Does he have a white lab coat and a pager now? 😂