Since ataxia is associated with the nervous system this is a good place to start. What do you want to talk about?

Well I have ataxia got diagnosed a year ago. Over the last 5 years I thought I was clumsy I would fall out of no where or fall in the streets. Always starred up my knee got alot of bruises. It took me to get check out when family came over and I fall down the stairs and they told me I had to get checked out they are worried. And I got a MRI and my cerebellum is really small. When I got the news I cried for a bit knowing that my cerebellum and my balance wants coming back. Over the last 6 months I fell about 20 times like I don't know to walk anymore. Part of those 20 I fell down the stairs 5 times. Started speech therapy but I always had a speech problems sinece I was little so I felt like that wasn't going to help much. What I really like is physical therapy. I'm really sad there is no care. I was told I could end up in a wheelchair. I guess I'm asking for help how to deal with this.

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@tiajamison
I have only had one episodic ataxia incident although your post has made me rethink of why I'm falling.
I fall often although I used to fall multiple times every day. I'm currently going to physical therapy for balance training. How are you ever going to therapy for balance training and if so did it help?
In my episode I couldn’t go up one step and I kept going off to my left I couldn’t walk straight or right only in left circles.
I believe my ataxia was caused by one of my seizure medicines probably Dilantin.
Do you weave when you walk or have a hard time walking straight or find walking slow, up an incline or walking slowly more difficult?
Thank you for making me rethink my balance issues. I have always blamed my balance on seizures & meds. I'll ask the therapist about possible Ataxia tomorrow.
Jake

Hello @tiajamison and welcome to Mayo Clinic Connect. You are in the right group to talk about ataxia, yes. There was actually already another discussion on this same topic, so you will notice that I have moved your post to that discussion: https://connect.mayoclinic.org/discussion/ataxia-1/

This will allow you to review the past discussion if you click View and Reply from your notification and connect better with others who have already shared their experiences. Members such as @jakedduck1 @speechless623 and @wittmack were part of the original discussion and I see @jakedduck1 has already joined you.

I can tell you are very worried about what life may look like going forward, which is very understandable. I have shared a link below that you may find helpful in terms of what Mayo Clinic recommends as next steps.

- Axtaxia: https://www.mayoclinic.org/diseases-conditions/ataxia/symptoms-causes/syc-20355652

As you can see by the information in the link above, treatment recommendations depend on the cause. Are you familiar with the cause of your axtaxia?