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DiscussionHow did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 4 4:16pm | Replies (205)Comment receiving replies
Replies to "That seems like a very large increase in pain for a fairly small drop in dosage...."
I started with 50 mg. prednisone in mid November and am down to 15 now. Some headache along the way but gone now. Tried going down another mg. 2 weeks ago, but too much pain in buttocks and hamstrings. Have to make intervals longer between reductions of 1 mg. at a time.
My tapering isn't going well. Went from 20 mg down to 15 (1 pill). Decided to increase by a 1/4 of a pill which is 1.25 mg. 15 mg to 16.25. So far not kicking in. The fatigue is getting to me. The pain is up between my shoulder blades and into the back of my neck. Legs are so tired. I seem to be very shaky (almost weak). Also, I seem to have more than normal saliva (weird or what). Hanging in there though. Not hearing back for the neurologist at all. Not able to get into the Rheumatology clinic until June or July (and that's on an urgent basis). I'm okay, just frustrated. If I didn't have this group, I would know nothing. Thank you all.
I sank into two months of depression and was not motivated to do anything. All I did was eat , sleep, make dinner and wash dishes. I keep promising myself to clean but just don’t have the energy to do so.
That’s very helpful to know and what I was concerned about. Thank you.