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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 5 hours ago | Replies (578)Comment receiving replies
Replies to "Did the MM cause your kidney issue? I know that it often does kidney damage before..."
@tml No, the kidney issue was diagnosed formally in 2015, MM wasn't until 2018. We double checked it also, to be sure MM wasn't part of the issue. Because of the MM and nature of the rare kidney disease [only 50 people in the world diagnosed with it!] I am not a candidate for transplant. Working on holding on to function as long as I can before needing to start dialysis, which I will be on rest of my life.
Patience is difficult when you are anxious, isn't it? I certainly can relate to that! You need to give the medications your doctor has chosen, a chance to work. Make sure that you are writing down questions you have for the next appointment. My doctor always looks at my notebook and asks me about anything listed there, what questions I have. He takes his time so I don't leave his office feeling like something was missed.
Happier days are ahead of you, definitely. Great way to approach it all, and life in general.
Ginger