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@rosemarya

@tml, You could call but not sure that a voice mail will be answered until tomorrow. However, you could call to find out if someone is covering on the weekend and a phone number is provided. Peace of mind is certainly worth the call.
I have not had the meds and the side effects you describe, and I am happy that Lori, who has already traveled this journey, is offering the support from her experience.
I know that you are worried about today, tomorrow, and the next days. When I was at endstage liver failure, possible bile duct cancer, and on dialysis for acute kidney failure, my survival secret was that I absolutely had to live for the moment. That could be a brief moment, an hour, or a day. I dared not think about tomorrow and all the things that might be ahead, and made a decision to focus on one positive thing - anything - each day. It became a blessing hunt , and when I began to look for blessings, I found that I could block out some of the negativity and doubts that haunted me. I even began to keep a list. On one dark dreary day, I celebrated a tiny ray of sunshine that popped thru the clouds and it uplifted my mood. Even the the shadows on the ceiling as the wind blew the tree branches in the beam of the street light became my blessing on sleepless nights because I was able to be like a child and let my imagination go wild with the shapes and rhythm of the shadows. Sometimes it even put me to sleep!
I'm getting off topic, But i want you to know that you re not alone. Have you considered beginning a journal that includes blessings that you experience?
I also would encourage you to call your doctor in the morning of you don't get in touch with someone today. He might want to see you before Thursday.
Be easy on yourself. If there is a couch in a sunny window curl up for a nap.
Hugs.

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Replies to "@tml, You could call but not sure that a voice mail will be answered until tomorrow...."

After reading your story I am heartened as you went through so much! I can imagine that it was incredibly difficult and also needing a donor! I do need to think of the positive things instead of wishing myself in the past making different decisions as I am where I am. I will try to do the shot soon. I have tried to list some things I should do to feel better! Get my hair cut perhaps. I do need to focus on what is good. I keep comparing to my first round of medications that were very minimal. I am at this point way luckier thanks my sister in law who had several kidney transplants. She had type 1 diabetes but it was the heart surgery that she did not survive. So many on this site have had huge problems that they have surmounted and I know it can be done. I just need to stop my out if control brain! I will think of all if you now!!!