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Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

Kidney & Bladder | Last Active: Jun 1 4:57am | Replies (216)
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@frauline

Just found out I have this disease and would like to know what is the next step for me to take? Do I get a referral to Nephrologist or what do you think?

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Replies to "Just found out I have this disease and would like to know what is the next..."
Ginger, Volunteer Mentor | @gingerw | Mar 20, 2022

@frauline Welcome to Mayo Clinic Connect! I'm glad you found us, and are taking an active approach to a new diagnosis.

We are not medical doctors. I am also a kidney disease patient, hovering on the cusp of Stage 5. Has your doctor told you the cause of your disease? The most common ones are diabetes and uncontrolled high blood pressure. That said, did your doctor refer you already to a nephrologist [it seems he/she would!] If you can give us a bit more information, I am sure there will be others who step in to talk about their experience. Ask away on your questions!
Ginger

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Colleen Young, Connect Director | @colleenyoung | Mar 20, 2022

Hi @frauline, I'd like to add my welcome. I moved your questions to this existing discussion:
- Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) https://connect.mayoclinic.org/discussion/stage-4-ckd/

I did this so that you can connect with others like @gingerw @anet @veteran @kamama94 @billagreste @sissieann @blessedmamie4 @cehunt57 @pdq1 @smeegle and more.

I also like to know what led to your diagnosis. At stage 4, it’s a good idea to seek the care of a nephrologist (a doctor who specializes in treating kidney disease).

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