@tml, I am a liver and kidney transplant recipient and I am very familiar with down days and the stress of wondering and worrying. I have had my share of miserable days of ugly side effects, too. I just felt like I wanted to drop in and say that I hope that you will begin to feel better soon.

Hi @tml ugh, down days are the pits. Especially after you had a relatively positive week on your new meds and a feeling of hope on the horizon. It’s ok to allow yourself to feel less than perky but I’m going to encourage you to keep pushing forward! Just don’t get caught in that downward spiral again. You know what I’m going to say, right? You have to stay positive. I’m a real nag when it comes to that. ☺️
I read the side effects of revlimid too and I can see where you’d be concerned about DVTs. But it looks like it’s more prevalent with MM patients who are taking dexamethasone, a steroid medication. Are you on a prescription for steroids right now? That’s another question for your doctor. They may suggest a blood thinner while you’re taking it to avoid any possibility of blood clots.

Because you’re a patient at Mayo, you have a patient portal where you can contact your doctor or his NP. This is the doctor who prescribed the Revlimid, right? It’s easy to send off a note to them to ask about a blood thinner, if it’s safe for you to take one or advised in your case. Or check with your new local doctor. Don’t be hesitant to ask questions. 🙂 Part of their treatment for you is also dealing with your emotional state, to help avoid anxiety and worry.

I also know it’s really hard when you’re dealing with pain on daily basis. It saps your energy. Did you mention the rib tenderness to your doctor? It’s pretty common to have bone pain with MM so have you been offered any suggestions for pain management?