Colleen,
Thank you for your recommendations. However, what I think those of us who have ME/CFS are looking for is an ME/CFS connect group that deals
just with this disease. One of the people who responded to my earlier post said "We are the forgotten ones." She is absolutely correct. I think if there were some place where we could talk to each other online, we'd all feel better and we might just come up with something. The doctors certainly haven't and I've visited two nationally known experts. Years ago I also participated in a Harvard study, gave blood, did a psychological test, and nothing developed from this study. It lasted between three and five years and was centered at Brigham Hospital. It would be wonderful if Mayo Connect gave us our own talk outlet. Please consider this. Please know that this is a distinct disease and shouldn't be lumped with other post-viral syndromes. I think those of us who are afflicted deserve to be heard and Mayo is the place to listen. Again, thank you for your time and interest.