← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

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@jeanern01

Yes! @tmhb8 i was just diagnosed with an adrenal mass. It was found incidentally. It is a fairly small tumor. I was referred to endocrinologist, and had several initial labs, many to test hormones, I also had a ct scan of the adrenal glands. When I met with the endocrinologist she said I was unusual because my labs looked good but my ct scan was a little worrisome because the mass was very vascular. So I had to do a 24hr urine test that sent off to Mayo- some new test. Results are pending, but I was told if this test comes back ok, just repeat labs annually for a few years and then nothing. The dr said these are being found to be more and more common- so after initial work up if things look good then basically nothing probably to ever worry about. But every mass she said needs to be investigated. So I think it’s crucial to find a good endocrinologist. I am still learning about this- so I don’t know if I helped at all. Best wishes
Jeane

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Replies to "Yes! @tmhb8 i was just diagnosed with an adrenal mass. It was found incidentally. It is..."

I am in Florida and my adrenal mass grew from 3cm to 4cm in 8 months. They are recommending taking it out. The hormones are normal and they cannot be sure with the CAT scan. They do not do the 24 hour urine here. I am scheduled for surgery however I am wondering if I should have that test and where I can go for it here in Florida. I am very far from Mayo clinic and live in Boynton Beach.