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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@marie1959

Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain.

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Replies to "Anyone have relief for fingers and toes? Gabapentin has not worked. Constant pain."

Good evening @marie1959, it appears that you have been a member of Connect for quite some time....since 2018. I hope you have benefited from the posts you have read along the way. If I understand your discussion title, you are now dealing with PN (peripheral neuropathy) that seems to be centered on your fingers and toes. That is quite similar to my history. I was diagnosed with SFN (small fiber neuropathy) about the same time and for the same reasons. I did have a skin biopsy which supported the SFN diagnosis and I have been struggling along with tingling fingers and toes. I also started with Gabapentin. It worked as long as I took it only at night.

Do you take any other medication? Have you tried a compounded topical created by a compound pharmacist. I also found that to be helpful. It is lidocaine based and your clinician can add other components as your PN changes.

Several years ago I was introduced to medical cannabis as an alternative to the compound. I use a 1:3 CBD/THC balm from Papa and Barkley for acute pain and a 3:1 cbd/THC for acute pain. The P and B website has very helpful information that began my education. They are also helpful through their customer service portal.

You may want to try to compounded ointment first to see if you can find relief. I don't know where you live and what your state laws are for marijuana.
If you will let me know how you feel about these suggestions, I will continue to support your efforts.

May you be free of suffering and the causes of suffering.
Chris

I have not taken any other meds. Tapering the gabapentin now and will try another med. I have not tried any compounds. I live in Minnesota. Thank you for your comments.

Hi @marie1959, I would like to add my welcome to Connect along with Chris @artscaping. Chris has provided some great suggestions and experiences that have helped her. You might also find the following information from the Foundation for Peripheral Neuropathy helpful -- Treatments: https://www.foundationforpn.org/treatments/, as well as the neuropathy stories from other members available in this discussion:

-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share a little more about your diagnosis and any treatments you've tried?

Hello @marie1959. I noticed you posted about peripheral neuropathy in your original post so you will see I have moved your post into an existing discussion on the same topic where members such as @trishh @betoma and @amahoff.

I also see the @artscaping and @johnbishop have come in to share some information with you. How are you feeling today?