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Feeling tired! Do others with PMR feel significantly more tired?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (75)Comment receiving replies
I agree. I started weaning down from 20 to 15 mg on Feb. 23 and I think it does take awhile for everything to adjust. However, I will be trying another 2.5 down starting next week, which is a month. If it's good that's great, if not back up. I think a whole pill is too much, but that is what the neurologist recommended and all things considered, it hasn't been bad at all. So I'm going to try a half this time. Slower is better I think? I'm just glad to have my life back at this point.
Replies to "I agree. I started weaning down from 20 to 15 mg on Feb. 23 and I..."
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When I got down to 5 mg I started doing the 5/4 regime for one month then 4 for one month then 4/3 one month. It was when I went to three that I started having symptoms again and extreme pain. I augmented with Tylenol but after two weeks realized I was in a full-blown flareup. Went back up to 5 mg and that diminished the pain and my CRP went down. I think the moral to the story for me is, based on something a wise woman said in this forum, your body dictates the rate at which you wean off. I am fortunate that I have a doctor that truly believes that I know my body better than he does and he and I confer and if there is no major reason why I shouldn’t do something we go ahead with it. I would thoughEmphasize though that you should always discuss with your medical practitioner