Can you apply to another location?

Thanks. I wonder if maybe that’s the path I should take. I have been seeing a neurologist and rheumatologist here in CA but I have not seen any improvement on my involuntary movements

If you live in Ca, have you tried one of the major hospitals locally yet.
I use to work at UCLA and I would recommend going there if you live in southern Ca

Have you been going to a major hospital in Ca.
It would be more convenient than going to Az.
I recently retired and use to work at Ucla. I dont know how their neuro dept is but overall they are one of the best hospitals.

I’m in the SF Bay Area. I used to go to UCSF and now with Stanford. I have Medi-Cal (county health plan). The doctors say lupus caused my involuntary movements. But I don’t have any other symptoms of lupus.

You have been seen by the best hospitals in Ca. I dont know if it worth it to travel to Az for Mayo.
I retired to Az recently so that is why I chose Mayo

There is a program through Mayo called the physician referral program. Initially I tried to go on my own and was denied by Mayo. Then my PCP referred me through the physician referral program and I got in....going to Mayo was a life saver for me. Good Luck.

Oh. I see. Which location?
How did you go about talking to your PCP about it? Did you go to General Internal Medicine first to get a diagnosis and then get referred to the specialists?

My PCP knew something was wrong with me and we kept running up against closed doors locally. I told him about the program at Mayo and asked him if he would do it and he said yes. I saw the rheumatologist at Mayo first then he made referrals to integrative med and neurology at Mayo. I went to Scottsdale.

Thanks. My main goal is to be seen by a neuro for my involuntary movements and rhema for lupus. After 6 meds and 5 botox injections have failed to control my orofacial movements, I'm looking at other possibilities of what's causing them, not just lupus. Perhaps I could wait for my next botox (2 months away) and see how it goes. If no still no improvement, I'll ask my PCP.

I HOPE THINGS TURN OUT WELL FOR YOU