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Feeling tired! Do others with PMR feel significantly more tired?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2023 | Replies (75)Comment receiving replies
I am a 66 year old male and have had PMR for about 15 mos. I’m down to just one MGM of prednisone, soon to be none. I’ve had to regress three times, each time going back up by a MGM for a week or so. Two points: 1. My rheumatologist suggested that when I have pain after reducing my prednisone does I should supplement it with a NSAID like ibuprofen or Alieve or Tylenol. Since I have been on blood thinners due to having bilateral pulmonary embolisms ( blood clots in both lungs) a few months ago, which have since disolved I have used two extra strength Tylenol when I have a lot of pain, usually in the morning and I take two before I go to bed at night to supplement the prednisone. This has worked pretty well for me. 2. I to have bouts of fatigue. Every day around noon I get overwhelmingly tired and sleepy and have to take a nap in order to get through the day with any level of energy. This has been consistent since I was diagnosed and hasn’t lessened as I’ve decreased my prednisone. I’m not sure when it will lessen or stop. I would appreciate any input from people that have eventually gotten over the fatigue and may know when or why.
Replies to "I am a 66 year old male and have had PMR for about 15 mos. I’m..."
Thanks for your reply. It gives me some insight into the fatigue that has resumed, although the pain has not. The pain levels are at 0 right now. I do have other side effects from the Prednisone. My neurologist is very difficult to get hold of, so it's been a "common sense" approach to the weaning. So down 2.5 next week. Right now I'm on 15mg. I do know there are others whose cortisol levels have leveled out since weaning off the Prednisone. Looking forward to getting some of the old "umph" back. Take care.
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@christopherc, You mentioned struggling at 1 mg of prednisone. My first round with PMR took 3 and half years to taper off and the last six months I went back and forth between 1 mg and 1/2 mg splitting 1 mg tablets. It wasn't always precise but it did finally allow me to taper off of prednisone.