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DiscussionDo other long haulers suffer with brain changes? Seen any improvement?
Post-COVID Recovery & COVID-19 | Last Active: Nov 26 10:36am | Replies (183)Comment receiving replies
Replies to "So glad to hear from someone who feels the same way. We have to put our..."
Our brains are working exactly the same. I’m tired of the bloodwork that reveals nothing. I’m tired of being passed on from one doctor to the next. I live in a small city in New York, but even after going to the Cleveland Clinic I have no answers and no direction. My husband is a heart attack survivor and my sister is a cancer survivor and they can both run circles around me. There was treatment and they got better. No treatment for me, and no one cares. What has been going on for 40 years? I think it’s time to speak out - loudly. But to whom? We need someone with a connection. That seems like the only way to get things done. The author of Seabiscuit and Unbroken has ME/CFS. We need her because she’s famous.