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Tight Fitting Jeans or Leggings

Polymyalgia Rheumatica (PMR) | Last Active: Feb 8 1:19pm | Replies (30)

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@mzamyl

Well that is a heavy load. Sometimes I feel like I have a hard time being a caretaker for myself. I have gone to several mindful self compassion courses which helped me a lot. I was already an insomniac so when I had 15 mg of steroids I really didn’t sleep. At 7 1/2mg I am still awake for several hours at night. I can always go to sleep I just can’t stay asleep. I know I have to keep reducing the steroids but sometimes it feels like an iron band around my body at the level of my biceps. I lived alone as a widow for 7 years and I get worried about even getting dressed. Two of my daughters have moved in with me though to save money for a house so that has been helpful. I also have met a new partner who eNjoys taking care of me.

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Replies to "Well that is a heavy load. Sometimes I feel like I have a hard time being..."

On the higher dosages of prednisone, I would fall asleep, but "startle" awake in two hours. I couldnt get back to sleep so would get up, read for a couple of hours, drink some lemon balm tree, and finally go back to sleep for a couple of hours. I often felt like a hepped-up Zombie. I remember great difficulty in dressing myself and anything that went on overhead - like sports bras or tank tops - were impossible. Thankfully, that's passed. "An iron band around my body at the level of my biceps" - I haven't heard anything like that before and I'm trying to imagine it. For me it was "an astronaut suit of pain and stiffness." I'm glad that you have family and others who can help you out. Take care, @mzamyl, Teri