Hello, I've had difficulty swallowing for about 2 years now going on 3. It was very sudden and I never had any other problems before that. This happens everytime I eat although there are things that are harder/easier to eat than others, I've also somewhat adpated the way I eat so I don't choke but it's still a problem.
I've done pretty much every test that they've had:
-Upper endoscopy
-Esophageal manometry
-Barium swallow
-Video Fluoroscopic Swallowing Exam
All these tests have come back normal. The only thing they found was a that I had a hypertensive upper esophageal spincter. All they want to do is use a balllon to widen the esophagus but that doesn't really tell me what's wrong in the first place. None of the medications they've given me have helped like anti acids etc.
I've also had a lot of other symptoms. I have constant IBS problems, numbness and tingling in my hands and feet and sometimes I even wake up with half my body numb, although that subsides with time and I just generally feel bad all together. I almost forgot to add but I sometimes have muscle weakness too.
They did a nerve study on me to see if I had something else but all they found was carpal tunnel. Now my PCP has said that we've exhausted all the exams having to do with my esophagus / digestive system and just sent me home with nothing but anti acids that don't even work. They aren't willing to recommend me to a neurologist. This is the second PCP that I've had that basically just dropped me and basically shrugged their shoulders. Now I don't know what to do or where to go because the only other test left are neurology but because they doubt that it could be that they aren't willing to send me. Any advice?
Hi @lostinspace25, welcome. I'm sorry to hear that you feel that your doctors have run out of options for you. While fellow patients like the members here on Mayo Clinic Connect are not able to diagnose, we may be able to help you figure out what questions to ask.
I have moved your post to this existing discussion called:
- Nerve pain and difficulty swallowing: I could really use some help https://connect.mayoclinic.org/discussion/hi-i-could-really-use-some-help/
Click the link to see the posts from the beginning where @jcbonne1 describes a situation with simularities to yours. He receives a lot of great tips from others that you may benefit from.
You may also be interested in these related discussions:
- How Neuropathy has impacted swallowing https://connect.mayoclinic.org/discussion/how-neuropathy-has-impacted-swallowing/
- Swallowing and digestive problems https://connect.mayoclinic.org/discussion/swallowing-and-digestive-problems/
- Achalasia https://connect.mayoclinic.org/discussion/achalasia/
Have you seen an ENT specialist or a speech pathologist?