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My experience with Small Fiber Neuropathy

Neuropathy | Last Active: May 24, 2022 | Replies (85)
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@gregoria

Hi everybody. I'm new in this forum. I don't have still my diagnosis but one of the neurologist I visited sais so an told me they are buying a corneal microscope that can find the small fiber damage .My feet hurt a lot and my hands are numb.. As if Ihad globes on. Ive also had digestive problems. I, m on lyrica and amidtriptilineq. They said it could be autoinmune because I have hipotiroidism and autoinmune gastritis. My vitamines are ok . Im taking b12. Magnesium. Nucleodol and gyn tonic from to time. I have an appointment with a podologist. What else can I do to relieve the pain? Thks

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Replies to "Hi everybody. I'm new in this forum. I don't have still my diagnosis but one of..."
John, Volunteer Mentor | @johnbishop | Mar 15, 2022

Welcome @gregoria, It can be difficult to deal with the all of the different pains that are related to neuropathy and associated conditions. There are a couple of websites that you might want to use as a reference to learn as much as you can about your condition which may help you discuss your symptoms with your neurologist or doctors.

-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy - Treatments: https://neuropathycommons.org/neuropathy/neuropathy-overview

What is the hardest pain symptom for you to manage?

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Beth Wiseman | @bethwiseman | Mar 16, 2022

I wish I could help. Nothing has ever helped my SFN.

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obackus | @obackus | Mar 16, 2022

I am so sorry to hear of your struggles. I was finally diagnosed recently after twelve years of not knowing what was wrong with me. I have Small Fiber Neuropathy that has affected my heart, lungs, digestive tract, bladder, legs, arms hand and feet. I have been sent to physical therapy for issues with my left side and I am also being sent to a pain management clinic for help with the pain. I take Lyrica (300 mg per day), duloxetine (60 mg) and NSAIDs for the neuropathy. It does not seem to be a kind illness when it comes to pain but I hope you can find some relief. There are others on this forum that use differnt things like heat, epsom baths, vitamins/minerals, diet etc that might help you. I have found this forum to be very informative and helpful.

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