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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 5 hours ago | Replies (416)

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@jorged

Hi, I'm a 23 year old college student and I found this group because like many here, I started having twitching out of nowhere and it spread to my whole body (hands, legs, tongue and back). The truth is something strange, because this started just a month after I was given covid, and a month and a half after I stopped taking amitriptyline (since I suffer from migraines), I had a CAT scan and it came out fine, I also had an EMG and everything came out in order, my strength and reflexes are normal. I don't think it's because of the caffeine, because since I was a child I have always had coffee, so I guess my body is used to it. It is a very frustrating situation because there are days when one tries to forget and want to look for the causes, but there are days when there is always the ghost of ALS at your back, and the fact of being young does not help much sometimes, as I have read that when ALS occurs in young people, this is usually a very slow progression and can take years to manifest itself, I would appreciate if someone can help me, greetings.

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Replies to "Hi, I'm a 23 year old college student and I found this group because like many..."

Hello @jorged and welcome to Mayo Clinic Connect. It is so smart of you to connect with others who can understand. I would like to welcome members who have recently contributed to the discussion such as @pathfinder2263 @willard74 and @kennapie.

To clarify, have you been diagnosed with ALS and/or BFS?