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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)

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@damlady2

I have Lipo sarcomas in chest/ shoulder area. I have had 8 surgeries, 3 cryoblations and radiation. The first surgery was in 1988. Since the mid 1990’s I have been a Mayo Rochester patient. Presently I have a large mass on my brachial plexus. My oncology surgeon says the only way to stop this slow growing tumor is a quarter amputation of my arm/ shoulder. This would drastically change my life style. I am 77 years of age very independent and an active bike rider. My prayer is for continued slow growth. I am currently on a trial with Ibrance and have been taking it for 2 years. The masses have not shrunk and recently showed some growth. Positive attitude and trust in my team at Mayo has allowed me to remain positive and live life to the fullest.

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Replies to "I have Lipo sarcomas in chest/ shoulder area. I have had 8 surgeries, 3 cryoblations and..."

Update. I will be scheduled soon for a Four Quarter amputation of my right shoulder/arm. This will be at Mayo Rochester. I am most concerned about after surgery adapting to my new reality. Rehab Dr said I can do everything I did before. I do not understand this as I assume I will be on pain killers and not be able to drive, walk up stairs without assistance or many other tasks. I live alone in a remote area am not near a PT climic or hospital. Are my worries not founded? I am will to go into a transitional rehab facility.