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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@ansley

I took the big 3 for several weeks and after having a bad reaction, I stopped the treatment. I am asymptomatic and have started gaining back the weight I lost. My doctor suggested that I be under observation until I start having problems. Did you have the same experience?

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Replies to "I took the big 3 for several weeks and after having a bad reaction, I stopped..."
Sue, Volunteer Mentor | @sueinmn | Mar 14, 2022

I took the Big 3 plus other meds (other bacteria) for almost 20 months. The cumulative effect was pretty dreadful, so even though positive, I quit.
Instead I take Mucinex & NAcetyl Cysteine to thin the mucus, neb 7% saline and do airway clearance (huff coughing or Aerobika). 7% saline has been show to slow/stop the growth of MAC bacteria. Airway clearance keeps the amount of mucus in lungs to a minimum, limiting the nice, warm hiding place for NTM bugs to grow.
Sue

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