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DiscussionDo other long haulers suffer with brain changes? Seen any improvement?
Post-COVID Recovery & COVID-19 | Last Active: Dec 30, 2024 | Replies (185)Comment receiving replies
Replies to "I sympathize with all who responded to my ME/CFS post. One thing of note: All of..."
Have you or @nataliem ever looked into https://solvecfs.org/?
Might be a good place to start looking for a support group, or research studies.
Sue
Did the specialists help you at all? Any suggestions? I am also a sufferer of CFS after mono. Life is completely altered. I agree with everything you wrote. We are “ the forgotten ones.” There needs to be a documentary about us - anything to focus attention on this miserable condition! If I didn’t have a supportive spouse, I would have checked out of this world by now.