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@petuniamom567

I sympathize with all who responded to my ME/CFS post. One thing of note: All of you have Covid. Where are ME/CFS people? Why isn't there a
special spot for their response. The disease has been thriving officially for about forty years in the USA, yet it's not officially recognized yet? Money for
research is short. There are just a few specialists in the field. I've seen two of them. The situation doesn't make sense. Millions of people have been
affected. They've lost their incomes. Their lives have been drastically altered socially , emotionally and money-wise. Really, no one seems to care. Now, we're being lumped with the Covid people since ME/CFS is classed as a post-viral syndrome. ME/CFS should be studied separately. This would help both the ME/CFS people and the post-Covid people. A sadly missed opportunity is all I can say. After living half my life in a severely altered manner, this is all I can say.

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Replies to "I sympathize with all who responded to my ME/CFS post. One thing of note: All of..."

Did the specialists help you at all? Any suggestions? I am also a sufferer of CFS after mono. Life is completely altered. I agree with everything you wrote. We are “ the forgotten ones.” There needs to be a documentary about us - anything to focus attention on this miserable condition! If I didn’t have a supportive spouse, I would have checked out of this world by now.

Have you or @nataliem ever looked into https://solvecfs.org/?
Might be a good place to start looking for a support group, or research studies.
Sue