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@sophia53

It’s kind of funny the doctors always preface what they say with this is ‘like a brain injury’ but not ‘this is a brain injury’ so they don’t have to code it that way for insurance I think. That is the most frustrating part of all of this. The government said this wasn’t real and anything about it is experimental and people lose their homes, jobs and insurance. So many people are dead and so many more are suffering after effects. Trying to act normal but can’t because they aren’t. People say you look fine so you must be fine. This is hard. Some days impossible. But we have to keep going and be tough together. Support each other. Love & hugs. Hope ❤️

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Replies to "It’s kind of funny the doctors always preface what they say with this is ‘like a..."

I truly believe we are well on the way to calling post-Covid syndrome a brain injury.
Absent specific, quantifiable tests for these things, it takes a long time to define, document & systematize illnesses. The second complication is that long-Covid manifests in thousands of different ways. The third is that there is not a good agreement on how to document that the symptoms were caused by Covid, and were not a coincidence.
I'm sure most people who are just struggling to get through the day don't want to hears this, but agreeing to participate in post-Covid research might help.

Best wishes to each of you for a full recovery.
Sue