← Return to Hydroxicloriquine-Lupus-Prednisone & COVID19 Vaccine?

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@taml

Thank you so much for the tips and encouragement. Finding a doctor who believes me or treats long covid seams hopeless. But hoping the neurologist on Apr 15 can point me in the right direction. Thanks so much! So happy you feel a bit better.

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Replies to "Thank you so much for the tips and encouragement. Finding a doctor who believes me or..."

I'm not a doctor, but please alert the neurologist of the possibility you have transverse myelitis due to the vaccines. A number of patients in the Neuro V Long-Haulers Facebook group are reporting they were diagnosed with transverse myelitis after receiving the Covid vaccines. I recommend joining that group for help and support. I suffered sensory and motor peripheral neuropathy post Pfizer vaccine x 2 that was documented by two EMGs. I also had symptoms of spinal inflammation, which is unusual for peripheral neuropathy. I agree with the advice to try to be seen before April 15. If you can get in to see your primary care doctor, he or she should call the neurologist under these circumstances, and advocate for you to be seen earlier.

@taml I’m happy that you have an appointment even if it is next month. Waiting is the hard part of medical care. I included a link with info and tips on seeing a new doctor. The important thing to remember is to have a completely open mind-don’t go to the appointment convinced that you have long covid. Definitely tell the doctors about your history with the disease and immunizations.
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Can you start a journal of your health journey? Dates with the onset of symptoms, when you had vaccines, doctors you’ve seen, tests done, and any other problems that have come up. Sound do-able?