I’m sad to share that I have not found any answers for our condition. I do have an virtual appointment with Northwestern’s Long Covid Neuro Clinic on March 23rd. I have been waiting over 8 months for this appointment. Hoping they have some insight on our neuro involved long Covid. If you are interested in learning more about Northwestern’s clinic it’s easy to find by just googling them.
I too get intensified symptoms after activity. Though I will say many days there is a continuous present thrumming under the skin. I was also very active before Covid. Runner, hiker, distance cycling. I have had to give up all of it. When I have a good day, even a slow walk around the neighborhood, with assistance of my cane, can land me with over active nerves, muscle twitches, extreme leg weakness and tremors. And since the booster shot I got the end of Dec, I get all those symptoms in my upper body, back, arms and hands too.
I had mentioned in a previous post here that I am very curious about the research on micro clots in the blood possibly causing symptoms that mimic neurological symptoms. The information I saw was research coming out of South Africa and Europe. I’m wondering if they are re looking for this is patients in the US. It will be something I am sure to ask when I talk with Northwestern next week.
Lastly, I wanted to share this resource. https://youtube.com/c/RUNDMC1
I have been following Gez for the year now and find the information he shares as VERY helpful. Maybe some others following this thread will find this helpful also. (Hope it’s ok to share this here)