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@tml

I have a wonderful husband and a son. My husband just finished shoveling our walk and driveway!!! Hard to get out now but spring soon I hope! I bought some daisies at the market yesterday to brighten my day. I retired in 2020 thinking I was in the best of health! I was a librarian so I do have lots of books and read a lot. I have three very supportive sisters but they do not live close. I have friends who do keep in touch but somehow have not felt like trying to get together with them. Was okay until the last 10 days before Mayo as think went downhill then.. The stress if dealing with decisions has taken it’s toll. I focused too much on my bad care as opposed to getting better care. I know I need to push that down and just hope all these drugs are working especially now the Revlimid. Not much of a gardener as we have lots of gluttonous deer who seem eat everything. Go to the symphony and have tickets for Carmen and need to use my flex play tickets. Have decided not to look at any test results until 3 weeks so I do not see any early still negative numbers!

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Replies to "I have a wonderful husband and a son. My husband just finished shoveling our walk and..."

Hi@tml I’m so happy to hear you have all of this support around you. It’s really crummy though that this started happening right after you retired. My AML symptoms started the day after my 65th birthday. Doesn’t seem fair when we work so hard to stay healthy and expect to cruise into retirement without any obstacles. Fortunately, I did retire many years earlier so I had some great years before my turn with all the medical hoopla.
You sound like there’s a lot of positive things going on in your life that make it worth fighting for. I also love the symphony and theater. It’s just been ages now since I’ve been able to attend! Enjoy Carmen! It’s one of my favorite operas!

Your idea of not looking at test numbers until 3 weeks go by is pretty sound. What’s the old axiom? Ignorance is bliss? Sometimes it’s all we can do to get through the day. Adding anxiety by waiting for blood results can add fuel to the anxiety fire, I know that all too well.
How are you feeling after a couple days on the new medication? Any side effects?