Connect
← Return to Gluten intolerance and peripheral neuropathy
Discussion
Gluten intolerance and peripheral neuropathy
Neuropathy | Last Active: Mar 27, 2022 | Replies (22)Comment receiving replies
@scootwagon, I think it's great that you are doing your own research and learning as much as you can about your conditions. That's what brought me to Connect in 2016 after 20+ years of PN symptoms and deciding to make an appointment with a neurologist for a diagnosis. I was pretty bummed after the appointment. I only have numbness and some minor tingling in the legs and feet and I was diagnosed with idiopathic small fiber PN but there were no treatments that helped so the neurologist said just to followup if/when the symptoms got worse. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/
There are 2 good sites that I use a lot for research on neuropathy and treatments if you haven't aleady seen them.
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
Hoping the diet will fix the intestinal problems. I've been looking into the diet/lifestyle changes myself to help with my chronic constipation. Can you give us an update after your neurology appointment and being on the diet for awhile?
Replies to "@scootwagon, I think it's great that you are doing your own research and learning as much..."
Hi, You asked me to post an update, so here it is. I had an appointment with the neurologist, who confirmed that I have polyneuropathy affecting my hamds and feet. The doctor wants me to do some tests for cancer, so I willl be getting a lung xray and an ultrasound of my abdomen next week. Also more bloodwork, among other things to reconfirm that I don’t have diabetes.
I would rather hope this is related to celiac or gluten sensitivity, which would fit better with all the intestinal symptoms. However, I cannot say my diet has helped me much so far—I still have uncontrollable diarrhea and my neuropathy symptoms have worsened rather than improving as I had expected. Still trying to eliminate foods to find something my stomach can handle.
Connect
I will be happy to post an update. If you haven’t tried dieting, I recommend it. I didn’t expect it to work for me, but it quite distinctly reduced my symptoms in only a short time. Definitely worth a try.