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Gluten intolerance and peripheral neuropathy

Neuropathy | Last Active: Mar 27, 2022 | Replies (22)

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@scootwagon

My PN finally became better now that I have started a gluten free diet. I am wondering if the nerve damage I have is permanent or whether the numbness and residual tingling will ever go away.

Like Jenny, I am wondering how strict I need to be on this diet. However, one thing that freaks me out a bit, is that there seems to be a link between gluten sensitivity and Parkinson’s Disease. I watched my mother die of PD and it was horrible. She never had PN. Now I suspect, the damage from gluten sensitivity could be happening even if you don’t feel burning and tingling. So I guess I will just commit to a lifetime of dieting. Maybe I should even be thankful for the PN, because it slerted me to this danger.

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I have PN secondary to chemotherapy. I have been told by my physician, if the PN does not resolve within 5 years it’s not going too. The situation has been one of slow progression , although a recent bumper shot has made it much worse.

Welcome @scootwagon, It's good to hear that the gluten free diet is providing some relief for you PN symptoms. I don't think anyone can say for sure that there's a link between gluten sensitivity and Parkinson's Disease but then it's just my thoughts based on what I've read. Here's some information from 2020:

"Does gluten affect Parkinson's disease?
There's also currently no medical evidence that people with non-celiac gluten sensitivity—a condition in which people react to gluten-containing foods but do not have celiac disease—are more likely than average to develop Parkinson's disease."
--- Parkinson's Disease and Gluten-Free Diets - Verywell Health: https://www.verywellhealth.com/parkinsons-disease-and-gluten-free-diets-4148442

Just the fact that the gluten free diet is helping your PN symptoms would be enough for me to do more research on the cause of my PN. Are you able to share a little more about your PN diagnosis and any treatments suggested or started by your doctor or neurologist?