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Greetings @timcryan, and welcome to Connect. This is a group of patients and caregivers who help others with quality of life issues. I would absolutely call nighttime Neuropathy pain something that can impact your quality of life. It can also make you sleep-deprived. So let's have a look. First of all, how long have you had neuropathy? Have you been diagnosed? And has that diagnosis included a skin test biopsy?
I have had SFN small fiber neuropathy for a number of years. Mine is related to trauma accidents and surgeries over the last 50 years. Ever since trying medical cannabis for the pain and tingling and numbness of SFN, I have been able to sleep pretty well. I use a dropper of a CBD/THC tincture that I take before bedtime. Mine happens to be a 2:1 mixture of CBD and THC. Within about 20 minutes I wander off to sleep and wake up refreshed in the morning.
What have you tried? I am not good with opioids or OTC medications. My PCP is very supportive and together we evaluate and plan my daily routine. Because I succumb to anxiety quite easily I also use Duloxetine in the morning to take the edge off the anxiety that can create pain.
In addition to tinctures, I use a CBD:THC topical for both acute and chronic pain.
I am going to have to have some more information from you so that I can refine these suggestions to make them provide the greatest support.
Where on your body is the neuropathy pain the worst?
May you be free of suffering and the causes of suffering.
Chris
Replies to "Greetings @timcryan, and welcome to Connect. This is a group of patients and caregivers who help..."
hello and thank you for answering me . my dr is in in KS and will not prescribe cbd/thc. i tried Duloxetine and it made me deathly ill. Also I have take Gabepentine which only help to get me to sleep but the burning wakes me up'
the neurophathy has been going on for several years now. I have been diagonised but no skin test. The pain/numbness is on the feet and lower legs.
you say you have more info, please state what this is
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I also had multiple surgeries, lumbar fusion, cervical fusion and both hip replaced.
all within the past 16 years. I can deal with the pain n my feet and lower legs ok during the day but at night my feet feel like the are on fire. my Neurologist put me on Gabapentine and I take 600 mg. at bedtime. I take 600 mg at bedtime to help me sleep. I go to bed with cold and blue feet/toes due to Rauynauds and 1 hr. later my feet are on fire. I use Aspercream with Lidocaine. It helps a little. This has been going on for a long time and I am wondering of it is due to the Gabapentine. Has anyone had the same experiencke? I also have a other rare condition called Erythromelalgia which I developed after my first back surgery in Jan. 2005. Went to Mayo's twice and they confirmed iot. Know what iot is but don't have a cure. Does anyone else has/had worsening symptons due to Gabapentine?