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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@kmeikle1

Don't taper until you're feeling reasonably well. If you do, the inflammation will slowly accumulate and you'll have a flare. We all have a plan, but unfortunately we have to let the disease dictate when and how much we taper. Remember the average duration of PMR is 5.9 years (according to Mayo) and your objective is not a relentless drive to 0 prednisone. What we're trying to do is find the lowest amount of prednisone to keep the pain at bay. Once you get to 10 mgs., you might try reducing by half a mg. If I were you, I'd go back to 10.5 until all is well. Then try 10 and if that works, wait a month and try 9.5 again. I hope that gets you back on track.

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Replies to "Don't taper until you're feeling reasonably well. If you do, the inflammation will slowly accumulate and..."
skiing | @skiing | Mar 11, 2022

Thank you for your advice I agree 100% I thought my last 1mg deduction would be 10.5 to 9.5 then 1/2 mg after that each month
However pmr had a different plan so I am at 10.5 again with some morning soreness I will wait till that disappears then reduce as you suggest Al the bestb

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sashakay | @sashakay | Mar 12, 2022

I really appreciate your post. I thought I was doing so well with tapering but 10 days of high stress (which I “arrogantly” thought I was managing ) showed me the reality of this condition. The body never lies 💞. Increased dose from 3mg to 5 mg and pain went within 5 hrs from 10+ to 1-2. A painful lesson but one I needed to experience 😖

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samara66 | @samara66 | Sep 15, 2023

Hello. I keep looking for the Mayo Clinic citation that states the average duration of PMR is 5.9 years. Do you by any chance have it? My doctor was unconvinced that it takes that long to subside.

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