← Return to Starting radiation & hormone tx for recurrence: Your experience?

Discussion
Comment receiving replies
@natem

Thanks very much! Fortunately, that's what my Radiation Oncologist prescribed. I've had a pacemaker in since I was 45. So this having a lower cardiac profile helped it get approved. Sounded odd though, like he might have to fight my insurance company. Maybe they're not all covering it, because until I mentioned heart, I think he was going to give the injection. I'm surprised, he's at JHH , would've thought that would be the new standard of care.

A shortcoming of mine is I'm not always wanting to see the details, but he did show me the PSMA PET Scan, showing me the type 3 image at the and of the lymph nodes, further where the prostrate was, such the he bent, or drew the scan for the Versa radiation machine to include it. But, I haven't asked all the details about radiation dosage. it seems i receive two treatments that once started, only take about a minute each. The machine scans me first every time. I see you've been at NIH, I'm not more than about 45 minutes away. Thank you again for sharing that. Is there a specific need the fulfilled that may be unique and, or beneficial? It appears you have had much activity with testing, imaging and treatment. I'm 61 y.o. and self employed real estate sales, hoping I may remain active while treating, surviving,. I hadn't had any symptoms, but the .2 and .3 psa's I just started the Orgovyx about 2 or 3 weeks ago. It's fast working and I'm anticipating genital shrinking as I think it does the same thing as Lupron. So, I don't know if this will cure it even though that's the stated goal. I was hoping to put off ADT for as long as possible after completion of 6 month regimen. I'm sure that's never been said before...

Another concern is if it has micromastasticized and I need hormone therapies, I fear for when they become ineffective. I am going to ask him about boosting the site and wider margins around it. Thanks very much. My best wishes to you!

Kind regards,
Nate

Jump to this post


Replies to "Thanks very much! Fortunately, that's what my Radiation Oncologist prescribed. I've had a pacemaker in since..."

Nate, the NIH was a clinical trial for imaging which I volunteered for to see if it could locate the location(s) of my recurrence, it did not. So, off I went to Mayo for the C11 Choline.

Given your clinical history, the combined regimen may cure you or give you a long progression free survival. You can see from my chart that we're 3-1/2 years out from my last Lupron shot clearing my system and no treatment since.

Do some research on intermittent ADT (IADT). You certainly don't want to over treat, then again, you don't want to under treat.

Many in the PCa community are advocating bringing treatments forward in the disease and combining them to overwhelm it in a state where it is susceptible, a few sites vice many.

You can do some research, I sucked at biology and chemistry but generally I understand that ADT sensitizes the PCa cells to the radiation, making it more effective, symbiosis I recall from my high school science days...