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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
My limited understanding is that taking AIs for the first few years is the most important time so taking them even for a few years is better than not taking them at all with respect to breast cancer issues. That's a consideration and could be a welcome assurance. [I totally understand the poster who 'misses her Femora' and the extra sense of security she felt while on it.]
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I took tamoxifen for 4 months and stopped due to SEs, both joint pain, including horrific night leg cramps, and fear of the more serious possibilities that come post menopausal. I am not sure if I will be able to tolerate an AI, and I rather doubt it, but I am going to try them. My osteopenia is not severe, so I am hoping I can keep osteoporosis at bay with supplements and exercise. Are you familiar with the online prediction tools ?: https://www.tuftsmedicalcenter.org/ibtr/
which shows the benefits of both radiation and hormone therapy, and https://breast.predict.nhs.uk/tool
Given their toxicities, I too wish there was a way to determine who truly needs to take a hormone blocker, but since there is not yet a dependable blood test to detect distant cancer cells, all estrogen positive BC patients are prescribed them. I feel scared into submission for the time being.