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@gingerw

@jessskoldal Has your medical team been able to give you any insight on dealing with the residual swelling on neck and face? Is it perhaps from the radiation aftereffects, do you think?

I found an article about lymphodema, that may hold some answers for you! It was interesting to read, and offered me some ideas, too. It is from University of Pennnsylvania. Would you take a look at it, and see if a few of your concerns may be addressed, there?
https://www.oncolink.org/cancers/head-and-neck/head-and-neck-cancer-survivorship/lymphedema-after-head-and-neck-cancer
Ginger

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Replies to "@jessskoldal Has your medical team been able to give you any insight on dealing with the..."

So far all they've said is that they believe it to be side effects from the radiation. An "inflammatory response" is the term my doctor uses. They've recommended a few therapies that are used for lymphedema, but they don't seem to think that's what it actually is. The last time I spoke to my oncologist (about a month ago) he said he believes it'll be another 2 to 6 months before this resolves. Considering I was originally told 6 to 8 weeks, I don't know if I trust that timeline. Thank you for the resource. I will definitely take a look at it and see if it offers any insight or advice that I can use.