← Return to MBC spread to pleural space

Discussion

MBC spread to pleural space

Breast Cancer | Last Active: Sep 5, 2023 | Replies (6)

Comment receiving replies
@colleenyoung

@mom23boys, Peggy, I'm just seeing your message now. I'm sorry to hear that this has happened all so suddenly or at all! @pbnew @leeann66 are talking about ribociclib (Kisqali) over here:
- Ribociclib: Looking for information about efficacy and side effects https://connect.mayoclinic.org/discussion/rebociclib/

When do you discuss treatment options with your team?

Jump to this post


Replies to "@mom23boys, Peggy, I'm just seeing your message now. I'm sorry to hear that this has happened..."

Hi Colleen, how have you been? Good I hope. I just saw my Onc yesterday. We looked at the CT Scan and he apparently spotted one of the possible pleural lesions in October but it was so small he didn't think it worth mentioning. I did my research prior and found some little ditties called "pseudo tumors" which are actually not tumors at all. They are fluid collections that are found in the fissures of the lung and along the outer edges I guess. They can be mistaken for tumors. Due to this and pain in my left hip I was hoping we could radiate to relieve pain, he's ordered a PET Scan. Hopefully my insurance will approve it. He said it may take a "peer to peer" ( I guess like a tumor board to justify the need). I'm a bit worried about the loculated effusion. It sits in my upper rt. back of the lung and they won't be able to simply drain it like my original pleural effusion. It's basically "trapped" a bit in from the lung edge but he says too close to the heart so it would require a thoracic surgeon take a look. He said we'll watch closely and see if it gets bigger (CT in 3 months rather than my ones that have been extended out due to stability). We discussed Faslodex as a change if the PET shows these as new tumors and "possibly" any number of others, including infusion chemo. I've heard to try to hold off on that until after other things have been tried. Lots of unknowns.
Thank you for the links to those with Kisqali info. Knowledge is strength.
Have a great day.
Peggie